I have to drag an IV pole all over my house when Tulla needs to eat. It can be such a pain, and I hate having it next to the bed at night. The other week, I took a piece of cardboard and designed a stand for Tulla's feeding equipment to keep on a nightstand instead. I added a shelf for her pump, pulse-ox, and a place to hold a bottle, syringes, or whatever else I needed close at night. I took it over to my neighbor, who does woodwork, and asked if it was something he could bu

Tulla has had a pretty quiet week. We're still talking with her doctors about adjusting her reflux medication because she seems to be more uncomfortable with her feeds lately. Other than that, we haven't had many changes to report. I've been reading a lot about mental load. It refers to the things that rattle around in your brain and take up your emotional and mental energy. As a mom, I see it as the things you think about but nobody sees. Things like laundry, meal planning,

I've found that having a child with higher medical needs opens up a community that I hadn't been a part of before. It's not that I didn't know that families deal with medical challenges, but it's not something I had experienced before. When Tulla was born, I tried to act like everything was fine. I didn't really talk about my experience or her medical concerns. Partially because I didn't know it wasn't a one-time thing, and partially because I didn't want to acknowledge anyth

This post contains affiliate links that do earn me a small percentage in commission if you purchase the items from the link. Anything I make goes directly towards Tulla's medical-related expenses. Have you ever been in a situation where you've had to grab a bag and run? I like to think about myself as a fairly prepared person, but I certainly hadn't ever imagined I'd need to. That's the way it goes though, right? You don't think about these things until you're in that situati